Publikation

Patient Assessment Chronic Illness Care (PACIC) and its associations with quality of life among Swiss patients with systemic sclerosis: a mixed methods study.

Wissenschaftlicher Artikel/Review - 09.01.2023

Bereiche
PubMed
DOI
Kontakt

Zitation
Kocher A, Simon M, Dwyer A, Blatter C, Bogdanovic J, Künzler-Heule P, Villiger P, Dan D, Distler O, Walker U, Nicca D. Patient Assessment Chronic Illness Care (PACIC) and its associations with quality of life among Swiss patients with systemic sclerosis: a mixed methods study. Orphanet J Rare Dis 2023; 18:7.
Art
Wissenschaftlicher Artikel/Review (Englisch)
Zeitschrift
Orphanet J Rare Dis 2023; 18
Veröffentlichungsdatum
09.01.2023
eISSN (Online)
1750-1172
Seiten
7
Kurzbeschreibung/Zielsetzung

The Chronic Care Model (CCM) is a longstanding and widely adopted model guiding chronic illness management. Little is known about how CCM elements are implemented in rare disease care or how patients' care experiences relate to health-related quality of life (HRQoL). We engaged patients living with systemic sclerosis (SSc) to assess current care according to the CCM from the patient perspective and their HRQoL.