Patient Assessment Chronic Illness Care (PACIC) and its associations with quality of life among Swiss patients with systemic sclerosis: a mixed methods study.

Publication

Patient Assessment Chronic Illness Care (PACIC) and its associations with quality of life among Swiss patients with systemic sclerosis: a mixed methods study.

Journal Paper/Review - Jan 9, 2023

Kocher Agnes, Simon Michael, Dwyer Andrew A, Blatter Catherine, Bogdanovic Jasmina, Künzler-Heule Patrizia, Villiger Peter M, Dan Diana, Distler Oliver, Walker Ulrich A, Nicca Dunja

Citation

Kocher A, Simon M, Dwyer A, Blatter C, Bogdanovic J, Künzler-Heule P, Villiger P, Dan D, Distler O, Walker U, Nicca D. Patient Assessment Chronic Illness Care (PACIC) and its associations with quality of life among Swiss patients with systemic sclerosis: a mixed methods study. Orphanet J Rare Dis 2023; 18:7.

Type

Journal Paper/Review (English)

Journal

Orphanet J Rare Dis 2023; 18

Publication Date

Jan 9, 2023

Issn Electronic

1750-1172

Brief description/objective

The Chronic Care Model (CCM) is a longstanding and widely adopted model guiding chronic illness management. Little is known about how CCM elements are implemented in rare disease care or how patients' care experiences relate to health-related quality of life (HRQoL). We engaged patients living with systemic sclerosis (SSc) to assess current care according to the CCM from the patient perspective and their HRQoL.