Patient Assessment Chronic Illness Care (PACIC) and its associations with quality of life among Swiss patients with systemic sclerosis: a mixed methods study.
Journal Paper/Review - Jan 9, 2023
Kocher Agnes, Simon Michael, Dwyer Andrew A, Blatter Catherine, Bogdanovic Jasmina, Künzler-Heule Patrizia, Villiger Peter M, Dan Diana, Distler Oliver, Walker Ulrich A, Nicca Dunja
The Chronic Care Model (CCM) is a longstanding and widely adopted model guiding chronic illness management. Little is known about how CCM elements are implemented in rare disease care or how patients' care experiences relate to health-related quality of life (HRQoL). We engaged patients living with systemic sclerosis (SSc) to assess current care according to the CCM from the patient perspective and their HRQoL.