Patient Assessment Chronic Illness Care (PACIC) and its associations with quality of life among Swiss patients with systemic sclerosis: a mixed methods study.

Publikation

Patient Assessment Chronic Illness Care (PACIC) and its associations with quality of life among Swiss patients with systemic sclerosis: a mixed methods study.

Wissenschaftlicher Artikel/Review - 09.01.2023

Kocher Agnes, Simon Michael, Dwyer Andrew A, Blatter Catherine, Bogdanovic Jasmina, Künzler-Heule Patrizia, Villiger Peter M, Dan Diana, Distler Oliver, Walker Ulrich A, Nicca Dunja

Zitation

Kocher A, Simon M, Dwyer A, Blatter C, Bogdanovic J, Künzler-Heule P, Villiger P, Dan D, Distler O, Walker U, Nicca D. Patient Assessment Chronic Illness Care (PACIC) and its associations with quality of life among Swiss patients with systemic sclerosis: a mixed methods study. Orphanet J Rare Dis 2023; 18:7.

Art

Wissenschaftlicher Artikel/Review (Englisch)

Zeitschrift

Orphanet J Rare Dis 2023; 18

Veröffentlichungsdatum

09.01.2023

eISSN (Online)

1750-1172

Seiten

Kurzbeschreibung/Zielsetzung

The Chronic Care Model (CCM) is a longstanding and widely adopted model guiding chronic illness management. Little is known about how CCM elements are implemented in rare disease care or how patients' care experiences relate to health-related quality of life (HRQoL). We engaged patients living with systemic sclerosis (SSc) to assess current care according to the CCM from the patient perspective and their HRQoL.