Publikation
Cohort Profile Update: The Swiss Eosinophilic Esophagitis Cohort Study (SEECS).
Wissenschaftlicher Artikel/Review - 17.07.2024
El-Khoury Jeanine Wakim, Safroneeva Ekaterina, Saner Catherine, Rossel Jean-Benoit, Trelle Sven, Zwahlen Marcel, Biedermann Luc, Kreienbuehl Andrea, Greuter Thomas, Schreiner Philipp, Netzer Peter, Franke Annett, Brand Stephan, Hasler Chantal, Aepli Patrick, Burri Emanuel, Weber Achim, Sempoux Christine, Biral Ruggero, Jochum Wolfram, Diebold Joachim, Willi Niels, Straumann Alex, Schoepfer Alain M, Swiss EoE Cohort Study Group
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The Swiss Eosinophilic Esophagitis Cohort Study (SEECS) is a national cohort that was established in 2015 with the aim of improving quality of care of affected adults with eosinophilic esophagitis (EoE). Between 2020 and 2022, paper questionnaires were gradually replaced by fully electronic data capture using Research Electronic Data Capture (REDCap) software. We aim to provide an update of the SEECS 8 years after its launch.