Publikation

Historic characteristics and mortality of patients in the Swiss Amyloidosis Registry.

Wissenschaftlicher Artikel/Review - 15.02.2024

Bereiche
PubMed
DOI
Kontakt

Zitation
Brouwers S, Heimgartner R, Laptseva N, Aguzzi A, Ehl N, Fehr T, Hitz F, Jung H, Kälin J, Manz M, Muellhaupt B, Ruschitzka F, Seeger H, Stussi G, Zweier M, Flammer A, Gerber B, Schwotzer R. Historic characteristics and mortality of patients in the Swiss Amyloidosis Registry. Swiss Med Wkly 2024; 154:3485.
Art
Wissenschaftlicher Artikel/Review (Englisch)
Zeitschrift
Swiss Med Wkly 2024; 154
Veröffentlichungsdatum
15.02.2024
eISSN (Online)
1424-3997
Seiten
3485
Kurzbeschreibung/Zielsetzung

Systemic amyloidoses are rare protein-folding diseases with heterogeneous, often nonspecific clinical presentations. To better understand systemic amyloidoses and to apply state-of-the-art diagnostic pathways and treatment, the interdisciplinary Amyloidosis Network was founded in 2013 at University Hospital Zurich. In this respect, a registry was implemented to study the characteristics and life expectancy of patients with amyloidosis within the area covered by the network. Patient data were collected retrospectively for the period 2005-2014 and prospectively from 2015 onwards.