[The Swiss Brain Health Registry : a national infrastructure for Alzheimer's research].

Publikation

[The Swiss Brain Health Registry : a national infrastructure for Alzheimer's research].

Wissenschaftlicher Artikel/Review - 15.12.2021

Boillat Mathilde, Annoni Jean-Marie, Demonet Jean-Francois, Allali Gilles, Felbecker Ansgar, Gietl Anton, Klöppel Stefan, Monsch Andreas, Sacco Leonardo, Sollberger Marc, Frisoni Giovanni B

Zitation

Boillat M, Annoni J, Demonet J, Allali G, Felbecker A, Gietl A, Klöppel S, Monsch A, Sacco L, Sollberger M, Frisoni G. [The Swiss Brain Health Registry : a national infrastructure for Alzheimer's research]. Rev Med Suisse 2021; 17:2202-2205.

Art

Wissenschaftlicher Artikel/Review (Englisch)

Zeitschrift

Rev Med Suisse 2021; 17

Veröffentlichungsdatum

15.12.2021

ISSN (Druck)

1660-9379

Seiten

2202-2205

Kurzbeschreibung/Zielsetzung

The Memory Centres of several Swiss hospitals have set up a national online registry for Alzheimer's research, called www.BHR-suisse.org. This type of registry already exists in the United States (www.brainhealthregistry.org/) and the Netherlands (https://hersenonderzoek.nl/). It contributes, as do these initiating sites, to the creation of a global database of research partners who wish to contribute by participating in studies on neurodegenerative diseases and more particularly on Alzheimer's disease. By registering, they provide a certain amount of information and become potential research partners. Researchers can then select a panel of volunteers according to the selection and exclusion criteria of their studies, contact them and include them in their studies.