Publikation

Experiences of relatives with outpatient palliative care: a cross-sectional study

Wissenschaftlicher Artikel/Review - 02.06.2020

Bereiche
PubMed
DOI

Zitation
Fringer A, Stängle S, Bischofberger I, Büche D, Praxmarer R, Ch Ott S, Schnepp W. Experiences of relatives with outpatient palliative care: a cross-sectional study. Int J Palliat Nurs 2020; 26:230-237.
Art
Wissenschaftlicher Artikel/Review (Englisch)
Zeitschrift
Int J Palliat Nurs 2020; 26
Veröffentlichungsdatum
02.06.2020
eISSN (Online)
2052-286X
Seiten
230-237
Kurzbeschreibung/Zielsetzung

AIM
The authors aimed to evaluate the experiences of the relatives of dying people, both in regard to benefits and special needs, when supported by a mobile palliative care bridging service (MPCBS), which exists to enable dying people to stay at home and to support patients' relatives.

DESIGN
A cross-sectional survey.

METHODS
A standardised survey was performed, asking 106 relatives of dying people about their experiences with the MPCBS (response rate=47.3%). Descriptive statistics were analysed using SPSS 23.

FINDINGS
Many relatives (62.5%) reported that their dying relations when discharged from a facility to stay at home were not symptom-free. The MPCBS helped relatives maintain home care, and this was reported to be helpful. Support provided by the MPCBS made it easier for 77.6% of relatives to adjust care as soon as situations changed, and helped ensure that symptoms could be better controlled, at least for 68.2% of relatives. Younger relatives felt more encouraged by the MPCBS to care for their relatives dying at home.