Projekt
Inflammatory Neuropathy Consortium Base (INCbase
Laufend - Rekrutierung – laufend · 2021 bis 2025
Felbecker Ansgar, Leupold Daniela
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Kurzbeschreibung/Zielsetzung
The Inflammatory Neuropathy Consortium Base (INCbase) is an international registry for CIDP patients led by an international collaboration of CIDP experts. INCbase provides a state of the art modular research database that members may use to collect prospective standardized clinical data and, optionally, biomaterials. This infrastructure will allow us to perform global and unprecedented collaborative studies. In addition, as data entered into INCbase remains the property of that member, this infrastructure will allow use of the data to perform high quality monocenter studies. This custom-made CIDP registry was developed to also help physicians take care of CIDP patients during routine clinical practice.