Publikation

The Swiss Brain Health Registry: a national infrastructure for Alzheimer’s research

Le Registre suisse pour la santé du cerveau. Une infrastructure nationale pour la recherche sur la maladie d’Alzheimer

Wissenschaftlicher Artikel/Review - 15.12.2021

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Kontakt

Zitation
Boillat M, Sollberger M, Sacco L, Monsch A, Klöppel S, Gietl A, Felbecker A, Allali G, Demonet J, Annoni J, Frisoni G. The Swiss Brain Health Registry: a national infrastructure for Alzheimer’s research - Le Registre suisse pour la santé du cerveau. Une infrastructure nationale pour la recherche sur la maladie d’Alzheimer. Rev Med Suisse 2021; 17:2202-2205.
Art
Wissenschaftlicher Artikel/Review (Englisch)
Zeitschrift
Rev Med Suisse 2021; 17
Veröffentlichungsdatum
15.12.2021
Seiten
2202-2205
Kurzbeschreibung/Zielsetzung

The Memory Centres of several Swiss hospitals have set up a
national
online registry for Alzheimer’s research, called www.BHRsuisse.
org. This type of registry already exists in the United States
(www.brainhealthregistry.org/) and the Netherlands (https://hersenonderzoek.
nl/). It contributes, as do these initiating sites, to the
creation of a global database of research partnersb who wish to
contribute by participating in studies on neurodegenerative diseases
and more particularly on Alzheimer’s disease. By registering, they
provide a certain amount of information and become potential
research
partners. Researchers can then select a panel of volunteers
according to the selection and exclusion criteria of their studies,
contact them and include them in their studies.