Historic characteristics and mortality of patients in the Swiss Amyloidosis Registry.

Publication

Historic characteristics and mortality of patients in the Swiss Amyloidosis Registry.

Journal Paper/Review - Feb 15, 2024

Brouwers Sofie, Heimgartner Raphael, Laptseva Natallia, Aguzzi Adriano, Ehl Niklas, Fehr Thomas, Hitz Felicitas, Jung Hans H, Kälin Joel, Manz Markus G, Muellhaupt Beat, Ruschitzka Frank, Seeger Harald, Stussi Georg, Zweier Markus, Flammer Andreas J, Gerber Bernhard L, Schwotzer Rahel

Citation

Brouwers S, Heimgartner R, Laptseva N, Aguzzi A, Ehl N, Fehr T, Hitz F, Jung H, Kälin J, Manz M, Muellhaupt B, Ruschitzka F, Seeger H, Stussi G, Zweier M, Flammer A, Gerber B, Schwotzer R. Historic characteristics and mortality of patients in the Swiss Amyloidosis Registry. Swiss Med Wkly 2024; 154:3485.

Type

Journal Paper/Review (English)

Journal

Swiss Med Wkly 2024; 154

Publication Date

Feb 15, 2024

Issn Electronic

1424-3997

Pages

3485

Brief description/objective

Systemic amyloidoses are rare protein-folding diseases with heterogeneous, often nonspecific clinical presentations. To better understand systemic amyloidoses and to apply state-of-the-art diagnostic pathways and treatment, the interdisciplinary Amyloidosis Network was founded in 2013 at University Hospital Zurich. In this respect, a registry was implemented to study the characteristics and life expectancy of patients with amyloidosis within the area covered by the network. Patient data were collected retrospectively for the period 2005-2014 and prospectively from 2015 onwards.