[The Swiss Brain Health Registry : a national infrastructure for Alzheimer's research].

Publication

[The Swiss Brain Health Registry : a national infrastructure for Alzheimer's research].

Journal Paper/Review - Dec 15, 2021

Boillat Mathilde, Annoni Jean-Marie, Demonet Jean-Francois, Allali Gilles, Felbecker Ansgar, Gietl Anton, Klöppel Stefan, Monsch Andreas, Sacco Leonardo, Sollberger Marc, Frisoni Giovanni B

Citation

Boillat M, Annoni J, Demonet J, Allali G, Felbecker A, Gietl A, Klöppel S, Monsch A, Sacco L, Sollberger M, Frisoni G. [The Swiss Brain Health Registry : a national infrastructure for Alzheimer's research]. Rev Med Suisse 2021; 17:2202-2205.

Type

Journal Paper/Review (English)

Journal

Rev Med Suisse 2021; 17

Publication Date

Dec 15, 2021

Issn Print

1660-9379

Pages

2202-2205

Brief description/objective

The Memory Centres of several Swiss hospitals have set up a national online registry for Alzheimer's research, called www.BHR-suisse.org. This type of registry already exists in the United States (www.brainhealthregistry.org/) and the Netherlands (https://hersenonderzoek.nl/). It contributes, as do these initiating sites, to the creation of a global database of research partners who wish to contribute by participating in studies on neurodegenerative diseases and more particularly on Alzheimer's disease. By registering, they provide a certain amount of information and become potential research partners. Researchers can then select a panel of volunteers according to the selection and exclusion criteria of their studies, contact them and include them in their studies.