Research projects in human genetics in Switzerland: analysis of research protocols submitted to cantonal ethics committees in 2018.

Publication

Research projects in human genetics in Switzerland: analysis of research protocols submitted to cantonal ethics committees in 2018.

Journal Paper/Review - Jan 17, 2021

Driessen Susanne, Gervasoni Pietro

Citation

Driessen S, Gervasoni P. Research projects in human genetics in Switzerland: analysis of research protocols submitted to cantonal ethics committees in 2018. Swiss Med Wkly 2021; 151:w20403.

Type

Journal Paper/Review (English)

Journal

Swiss Med Wkly 2021; 151

Publication Date

Jan 17, 2021

Issn Electronic

1424-3997

Pages

w20403

Brief description/objective

This analysis provides a full national overview of genetic research dossiers pertaining to clinical and nonclinical trials, and to further-use research projects submitted for approval to ethics committees in Switzerland in 2018. It addresses the research type, medical field, number of individuals or datasets involved, diagnostic laboratories and data privacy, as well as the procedures foreseen for obtaining consent, communicating results, and dealing with excess data and incidental findings. The analysis results should constitute a basis for future discussions surrounding regulatory and ethical procedures that govern genetic investigations in biomedical research in Switzerland.