Project

Inflammatory Neuropathy Consortium Base (INCbase

Ongoing - recruitment active ยท 2021 until 2025

Type
Fundamental Research
Range
Monocentric project at KSSG
Units
Status
Ongoing - recruitment active
Start Date
2021
End Date
2025
Financing
Self Financed
Keywords
INCbase registry
Homepage
Brief description/objective

The Inflammatory Neuropathy Consortium Base (INCbase) is an international registry for CIDP patients led by an international collaboration of CIDP experts. INCbase provides a state of the art modular research database that members may use to collect prospective standardized clinical data and, optionally, biomaterials. This infrastructure will allow us to perform global and unprecedented collaborative studies. In addition, as data entered into INCbase remains the property of that member, this infrastructure will allow use of the data to perform high quality monocenter studies. This custom-made CIDP registry was developed to also help physicians take care of CIDP patients during routine clinical practice.