Monitoring of Patients’ Needs, Professional Triggers and delivered Basic Palliative Care Interventions in Routine inpatient and ambulatory of Advanced Incurable Cancer Patients: A sub-study to pilot the clinical practice tool – ESMO patient guide with KIPCC log - Project

Project

Monitoring of Patients’ Needs, Professional Triggers and delivered Basic Palliative Care Interventions in Routine inpatient and ambulatory of Advanced Incurable Cancer Patients: A sub-study to pilot the clinical practice tool – ESMO patient guide with KIPCC log

Automatically Closed · 2016 until 2017

Strasser Florian, Domeisen Benedetti Franzisca

Type

Clinical Studies

Range

Monocentric project at KSSG

Units

Zentrum für Integrative Medizin, Palliativzentrum

Status

Automatically Closed

Start Date

2016

End Date

2017

Financing

Others

Study Design

Piloting a clinical practice tool: A patient guide with KIPCC log has been drafted by the study team based on German translation of Guide for Patients with Advanced Cancer: Getting the Most Out of Your Oncologist. This sub-project is based on current work of MENTOR-Cancer complex intervention study (Qualitative Phase I) at KSSG and experiences from the IZERZO pro-ject, distribution of the patient guide will be piloted, followed by cognitive interviews of patients to assess comprehension, acceptability and face and content validity of the tool.

Brief description/objective

Increasing evidence from randomized studies (Level A) shows that quickly integrated palliative care interventions in the treatment of cancer patients may improve the quality of life of patients and relatives, illness and prognosis understanding and survival of patients, as well as the effective use of health care system resources. Most studies have investigated the difference be-tween additional specialized palliative care services compared to standard treatments.
Depending on the setting and training, oncologists and nurses are important providers of basic palliative interventions. These "Key Interventions in Pallia-tive Cancer Care" (KIPCC) have been defined in preliminary studies (IZERZO, literature review) and include illness and prognosis understanding, multi-dimensional symptom control, decision-making with respect to invasive inter-ventions and end of life, professional network including caregivers, family support, end-of-life preparation and spirituality. A structured screening of patient needs for KIPCCs seems to be important, yet questions remain about by whom, how and when (triggers) it should be carried out. Based on this, the provision of KIPCCs by oncologists and nurses supported by specialist palliative care is currently still unclear (in non-North American Settings).
The aim of the MENTOR study is to develop clinical practice tools, to train professionals in usage of the tools use, and to test them. Needs of patients and family members for KIPCCs and professional triggers for KIPCC can be captured and provided by doctors (oncologists and GPs) and nurses in inpa-tient, outpatient, and home routine settings.