A digitally facilitated citizen-science driven approach accelerates participant recruitment and increases study population diversity.

Publication

A digitally facilitated citizen-science driven approach accelerates participant recruitment and increases study population diversity.

Journal Paper/Review - May 16, 2018

Puhan Milo Alan, Steinemann Nina, Kamm Christian Philipp, Müller Stefanie, Kuhle Jens, Kurmann Roland, Calabrese Pasquale, Kesselring Jürg, von Wyl Viktor, Swiss Multiple Sclerosis Registry Smsr

Citation

Puhan M, Steinemann N, Kamm C, Müller S, Kuhle J, Kurmann R, Calabrese P, Kesselring J, von Wyl V, Swiss Multiple Sclerosis Registry Smsr. A digitally facilitated citizen-science driven approach accelerates participant recruitment and increases study population diversity. Swiss Med Wkly 2018; 148:w14623.

Type

Journal Paper/Review (English)

Journal

Swiss Med Wkly 2018; 148

Publication Date

May 16, 2018

Issn Electronic

1424-3997

Pages

w14623

Brief description/objective

Our aim was to assess whether a novel approach of digitally facilitated, citizen-science research, as followed by the Swiss Multiple Sclerosis Registry (Swiss MS Registry), leads to accelerated participant recruitment and more diverse study populations compared with traditional research studies where participants are mostly recruited in study centres without the use of digital technology.