[The Swiss Brain Health Registry : a national infrastructure for Alzheimer's research]
Journal Paper/Review - Dec 15, 2021
Boillat Mathilde, Sollberger Marc, Sacco Leonardo, Monsch Andreas, Klöppel Stefan, Gietl Anton, Felbecker Ansgar, Allali Gilles, Demonet Jean-Francois, Annoni Jean-Marie, Frisoni Giovanni B
The Memory Centres of several Swiss hospitals have set up a national online registry for Alzheimer's research, called www.BHR-suisse.org. This type of registry already exists in the United States (www.brainhealthregistry.org/) and the Netherlands (https://hersenonderzoek.nl/). It contributes, as do these initiating sites, to the creation of a global database of research partners who wish to contribute by participating in studies on neurodegenerative diseases and more particularly on Alzheimer's disease. By registering, they provide a certain amount of information and become potential research partners. Researchers can then select a panel of volunteers according to the selection and exclusion criteria of their studies, contact them and include them in their studies.