Publication

[The Swiss Brain Health Registry : a national infrastructure for Alzheimer's research]

Journal Paper/Review - Dec 15, 2021

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Citation
Boillat M, Sollberger M, Sacco L, Monsch A, Klöppel S, Gietl A, Felbecker A, Allali G, Demonet J, Annoni J, Frisoni G. [The Swiss Brain Health Registry : a national infrastructure for Alzheimer's research]. Rev Med Suisse 2021; 17:2202-2205.
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Type
Journal Paper/Review (Deutsch)
Journal
Rev Med Suisse 2021; 17
Publication Date
Dec 15, 2021
Issn Print
1660-9379
Issn Electronic
Pages
2202-2205
Publisher
Brief description/objective

The Memory Centres of several Swiss hospitals have set up a national online registry for Alzheimer's research, called www.BHR-suisse.org. This type of registry already exists in the United States (www.brainhealthregistry.org/) and the Netherlands (https://hersenonderzoek.nl/). It contributes, as do these initiating sites, to the creation of a global database of research partners who wish to contribute by participating in studies on neurodegenerative diseases and more particularly on Alzheimer's disease. By registering, they provide a certain amount of information and become potential research partners. Researchers can then select a panel of volunteers according to the selection and exclusion criteria of their studies, contact them and include them in their studies.